Mesothelioma Resources

Your Doctor

Your doctor is the first and best resource for understanding mesothelioma. There is a wealth of information available on the Internet and it is natural to want to learn as much as you can about your diagnosis. However, only a trained physician can evaluate your circumstances correctly.

Once you have consulted your doctor, you may wish to take advantage of valuable research and support resources via the Internet.

The American Cancer Society’s Cancer Resource Center

As a non-governmental organization, the American Cancer Society is the largest source of private funds earmarked for cancer research. The ACS website is a very good place to investigate ongoing research and treatment options, and it also provides extensive links helpful to your medical research, including methods of detecting mesothelioma are covered here. ACS advises you to remember to discuss all concerns and questions openly with your doctor.

Methods of detecting mesothelioma are covered here. ACS advises you to remember to discuss all concerns and questions openly with your doctor.

National Cancer Institute

The National Cancer Institute provides an online service called PDQ (Physician Data Query) that offers up-to-date information on cancer issues for patients, their families, doctors and other healthcare professionals. Detailed information on detection, diagnosis, treatment, support groups, clinical trials and treatments is reviewed and updated each month by oncology experts.

You might want to visit the information written for patients first, in order to get a clear understanding of the issues discussed in layman’s terms. For more detailed information, you can then explore the physician’s track.

Cancer Information Service (CIS)

The National Cancer Institute offers an informational and educational service known as the Cancer Information Toll-Free Telephone Service (CIS). Information is available in Spanish and English, and is up-to-date and easy to understand. You can get information about recent scientific advances, cancer programs, prevention, early detection and other topics.

Contact the CIS, toll-free in the United States and Puerto Rico, at 1-800-4-CANCER (1-800-422-6237), Monday through Friday, 9:00 a.m. to 4:30 p.m., your time.

MEDLINE

Published by the National Library of Medicine, MEDLINE is a comprehensive index of medical citations and abstracts dating back to 1966. In the past, this database was available only to students, to doctors or by subscription. However, there are now several Internet resources which offer free MEDLINE access, including:

An additional benefit of these services is access to full-text versions of many of the articles. PubMed publishes a list of MEDLINE journals with links to publisher web sites. These publications and abstracts are not written for the layperson, so make sure you discuss any literature you read with your doctor before making any decisions about them.

OncoLink

The University of Pennsylvania maintains OncoLink, an outstanding resource on the web for information about all types of cancer and related topics. The homepage has information about clinical trials, symptom management, cancer support services, financial issues, book reviews and many other topics.

Lung Cancer Resources Directory

Lastly, for a broad resource on the cancer topic and links to specific web sites, consult the Lung Cancer Resources Directory.

Legal Resources

If you or a loved one has been diagnosed with mesothelioma, you are eligible for compensation. While many law firms that represent victims of mesothelioma and other asbestos related diseases are ethical firms, there is a growing rise in deceptive tactics on the part of unscrupulous lawyers in the quest to find mesothelioma plaintiffs. Read our section on unscrupulous lawyers to learn what to look out for.